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Data Access

Access to Data held by the NTD

NTD data is stored centrally within Monash University as Data Custodian. Access to data is subject to applicable privacy laws and principles, and ethics approvals. Specific measures have been put in place to maintain the confidentiality of personal identifying information.

The NTD encourages the use of its data for a variety of purposes such as quality improvement, research and clinical planning.

Data access is subject to the approval of the NTD Steering Committee. When considering the approval of access to NTD data, the Steering Committee will seek to balance the importance of privacy protection and the significant public health interest from the proposed research.

Eligible Applicants

Researchers, medical professionals and pharmaceutical professionals working at research institutions, hospitals, private entities, government or other health services are eligible to request access to data held within the database for research purposes. Requests for data are noted and logged in the report tabled at the NTD Steering Committee meetings.

Image by Aman Chaturvedi

Data access request links

01

NTD Data Access & Publications Policy

The NTD encourages the use of its data for a variety of purposes such as quality improvement, research and clinical planning. The Data Access and Publications Policy defines how data from the NTD may be accessed and conditions regarding publication arising from data obtained. 

02

To submit a data access request please complete the online form via REDCap

linked here.

03

A descriptive list of the all data variables collected and analysed as part of the NTD.

NTD Data Dictionary link

Data access  request process 

NTD data is stored centrally within Monash University as Data Custodian. Access to data is subject to applicable privacy laws and principles, and ethics approvals. Specific measures have been put in place to maintain the confidentiality of personal identifying information.

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