top of page

About us

Image by Nguyễn Hiệp

National Transfusion Dataset

The National Transfusion Dataset (NTD) will form the first integrated national database of blood usage in Australia. The NTD aims to collect information about where, when, and how blood products are used across all clinical settings. This will provide Australia’s first integrated national database to record blood usage with the ability to link with clinical outcomes. The dataset will be an invaluable resource towards a comprehensive understanding of how and why blood products are used, numbers and characteristics of patients transfused in health services, the clinical outcomes after transfusion, and provide support to policy development and research.

The NTD was formed through the incorporation of the established Australian and New Zealand Massive Transfusion Registry (ANZ-MTR) and a pilot Transfusion Database (TD) project. The ANZ-MTR has a unique focus on massive transfusion (MT) and contains over 10,000 cases from 41 hospitals across Australia and New Zealand. The TD was a trial extension of the registry that collated data on ALL (not just massive) transfusions on >8000 patients from pilot hospitals. The NTD will integrate and expand these databases to provide new data on transfusion practice, using novel approaches to collect data on clinical outcomes. The NTD will link datasets of blood utilisation including prehospital, clinical and registry data, with the aim of closing the vital haemovigilance loop.

Where, when, how and why blood is used

Linking data on all blood product use and patient outcomes across Australia to create the first end-to-end picture of transfusion practice and clinical outcomes.

revised NTD logo_ October 2023 (2).png
  • Expand transfusion data coverage by integrating prehospital transfusion data with hospital data, and linking with registry transfusion data

  • Employ novel approaches, including natural language processing, to better collect outcome

  • Strengthen data quality

  • Improve access to transfusion data for stakeholders and researchers

  • Improve Australian transfusion research capacity and efficiency

  • Create new research opportunities (e.g. data for health economics analyses) to inform national transfusion policy and practice, improve blood utilisation and patient management and outcomes

Aims

Project Team

Meet the team who manages the day to day operations of the NTD

221202_Tina van Tonder.jpg

Project Manager

230919_KirstenC.jpg

Research Officer

Rosemary_Sparrow.jpg

Project Consultant

221206_Helen Haysom.jpg

Project Consultant

221202_Cameron Wellard.jpg

Data Manager

221202_Fiona Chen.jpg

Senior Data Officer

KarthikMandapaka.jpg

Karthik Mandapaka

Data Analyst 

Adam Irving.jpg

Health Economist

191204_Erica Wood.jpg

Project Lead

221202_Karina Brady.jpg

Project Investigator

220422_Neil Waters.jpg

Project Investigator

220422_Zoe McQuilten.jpg

Project Investigator

Data partnership group

Currently transfusion data capture in prehospital settings (e.g. ambulance / retrieval) and in the community are not linked or visible to hospitals. Monash University which manages the NTD along with other national datasets for blood diseases including myeloma, lymphoma and aplastic anaemia formed a Data Partnership Group together with Ambulance Victoria (AV), the Australian and New Zealand Intensive Care Society Adult Patient Database (ANZICS APD), Prehospital Emergency Care ANZ (PEC-ANZ), and Alfred Health and Flinders Medical Centre to address this data gap.

 

In 2022 the partnership has been expanded to include the Australian and New Zealand Intensive Care Research Centre (ANZIC-RC), the Australian and New Zealand Society of Blood Transfusion (ANZSBT), the Blood Matters Program and Australian Red Cross Lifeblood. The partnership with prehospital, hospital and the key clinical registries will strengthen the data coverage and quality in the NTD.

 

The dataset will be available for use by researchers, clinicians, government, industry and others to inform patient care, clinical guideline development and to generate hypothesis-driven research in the area.

TRU logo.png
BS logo.png
AV logo.png
MRDR logo.png
FMC logo.png
alfred logo.png
anzics.png
image.png
pec-anz.png
anzicrc.jpg
LaRDR logo.png
Pictures that could be used for images of red and white blood cells in blood vessels in sc

Steering Committee

The NTD Steering Committee comprised of the Project Lead, partners, and advisors will oversee project development, review project performance, provide strategic advice to the Project Team, and manage user access to the data asset.

Alfred Health

Ambulance Victoria

Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry

Australian and New Zealand Intensive Care Society Adult Patient Database

 

Australian and New Zealand Intensive Care Research Unit

 

Australian and New Zealand Society for Blood Transfusion

 

Australian Red Cross Lifeblood

 

Australian Research Data Commons

 

Blood Matters Program

 

Consumer Representative

 

Flinders Medical Centre

 

Lymphoma and Related Diseases Registry

 

Monash University - Transfusion Research Unit

Myeloma and Related Diseases Registry

 

Prehospital Emergency Care Australia and New Zealand

Mr Chris Berry, Dr Susan Morgan

 

Dr David Anderson, Dr Shelley Cox, Mr Anthony Dewit

 

Dr Lucy Fox

Prof David Pilcher

 

Dr Lisa Higgins, Prof Carol Hodgson

 

Mr Simon Benson

 

Dr James Daly

 

Dr Catherine Brady

 

Ms Linley Bielby

 

Ms Shannah Anderson

Prof David Roxby

Prof Stephen Opat

Dr Karina Brady, Dr Fiona Chen, Dr Adam Irving,
Prof Zoe McQuilten, Ms Tina van Tonder, Mr Neil Waters,

Dr Cameron Wellard, Prof Erica Wood

Prof Andrew Spencer

 

Prof Peter Cameron, Prof Biswadev Mitra, Prof Karen Smith

mrff-logo.jpg
ardc no back_edited.png
image.png

The NTD project received investment (doi: 10.47486/DP708) from the Australian Research Data Commons (ARDC). The ARDC is funded by the National Collaborative Research Infrastructure Strategy (NCRIS). The NTD investment is part of the ARDC National Data Assets - Australian Data Partnerships program. Project outputs for the NTD will be supported by the ARDC to be compliant with the internationally recognised Findable Accessible Interoperable Reusable (FAIR) guidelines.

The expansion and growth of the NTD is supported by a MRFF 2021 Research Data Infrastructure grant.

Support

bottom of page