National Transfusion Dataset
The National Transfusion Dataset (NTD) will form the first integrated national database of blood usage in Australia. The NTD aims to collect information about where, when, and how blood products are used across all clinical settings. This will provide Australia’s first integrated national database to record blood usage with the ability to link with clinical outcomes. The dataset will be an invaluable resource towards a comprehensive understanding of how and why blood products are used, numbers and characteristics of patients transfused in health services, the clinical outcomes after transfusion, and provide support to policy development and research.
The NTD was formed through the incorporation of the established Australian and New Zealand Massive Transfusion Registry (ANZ-MTR) and a pilot Transfusion Database (TD) project. The ANZ-MTR has a unique focus on massive transfusion (MT) and contains over 10,000 cases from 41 hospitals across Australia and New Zealand. The TD was a trial extension of the registry that collated data on ALL (not just massive) transfusions on >8000 patients from pilot hospitals. The NTD will integrate and expand these databases to provide new data on transfusion practice, using novel approaches to collect data on clinical outcomes. The NTD will link datasets of blood utilisation including prehospital, clinical and registry data, with the aim of closing the vital haemovigilance loop.
Expand transfusion data coverage by integrating prehospital transfusion data with hospital data, and linking with registry transfusion data
Employ novel approaches, including natural language processing, to better collect outcome
Strengthen data quality
Improve access to transfusion data for stakeholders and researchers
Improve Australian transfusion research capacity and efficiency
Create new research opportunities (e.g. data for health economics analyses) to inform national transfusion policy and practice, improve blood utilisation and patient management and outcomes
Meet the team who manages the day to day operations of the NTD
Data partnership group
Currently transfusion data capture in prehospital settings (e.g. ambulance / retrieval) and in the community are not linked or visible to hospitals. Monash University which manages the NTD along with other national datasets for blood diseases including myeloma, lymphoma and aplastic anaemia formed a Data Partnership Group together with Ambulance Victoria (AV), the Australian and New Zealand Intensive Care Society Adult Patient Database (ANZICS APD), Prehospital Emergency Care ANZ (PEC-ANZ), and Alfred Health and Flinders Medical Centre to address this data gap.
In 2022 the partnership has been expanded to include the Australian and New Zealand Intensive Care Research Centre (ANZIC-RC), the Australian and New Zealand Society of Blood Transfusion (ANZSBT), the Blood Matters Program and Australian Red Cross Lifeblood. The partnership with prehospital, hospital and the key clinical registries will strengthen the data coverage and quality in the NTD.
The dataset will be available for use by researchers, clinicians, government, industry and others to inform patient care, clinical guideline development and to generate hypothesis-driven research in the area.
The NTD Steering Committee comprised of the Project Lead, partners, and advisors will oversee project development, review project performance, provide strategic advice to the Project Team, and manage user access to the data asset.
Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry
Australian and New Zealand Intensive Care Society Adult Patient Database
Australian and New Zealand Intensive Care Research Unit
Australian and New Zealand Society for Blood Transfusion
Australian Red Cross Lifeblood
Australian Research Data Commons
Blood Matters Program
Flinders Medical Centre
Lymphoma and Related Diseases Registry
Monash University - Transfusion Research Unit
Myeloma and Related Diseases Registry
Prehospital Emergency Care Australia and New Zealand
Mr Chris Berry, Dr Susan Morgan
Dr David Anderson, Dr Shelley Cox, Mr Anthony Dewit
Dr Lucy Fox
Prof David Pilcher
Dr Lisa Higgins, Prof Carol Hodgson
Mr Simon Benson
Dr James Daly
Dr Catherine Brady
Ms Linley Bielby
Ms Shannah Anderson
Prof David Roxby
Prof Stephen Opat
Dr Karina Brady, Dr Fiona Chen, Dr Adam Irving,
Prof Zoe McQuilten, Ms Tina van Tonder, Mr Neil Waters,
Dr Cameron Wellard, Prof Erica Wood
Prof Andrew Spencer
Prof Peter Cameron, Prof Biswadev Mitra, Prof Karen Smith
The NTD project received investment (doi: 10.47486/DP708) from the Australian Research Data Commons (ARDC). The ARDC is funded by the National Collaborative Research Infrastructure Strategy (NCRIS). The NTD investment is part of the ARDC National Data Assets - Australian Data Partnerships program. Project outputs for the NTD will be supported by the ARDC to be compliant with the internationally recognised Findable Accessible Interoperable Reusable (FAIR) guidelines.
The expansion and growth of the NTD is supported by a MRFF 2021 Research Data Infrastructure grant.